Jan 10, 2009

Health - Pro-Anorexia Groups;Out of the Shadows

Tina Peng

A Web page labeled "Ana Boot Camp" recently offered its members a seemingly irresistible proposition: a 30-day regimen designed to help them drop some serious pounds, no exercise needed. The catch was that the group's members were to vary their daily caloric intake from 500 (less than half the daily minimum requirement for women recommended by the American College of Sports Medicine) to zero. They were supposed to track their progress, fast to make up for the days they accidentally "overate" and support each other as they worked toward their common goal of radical weight loss.

Pro-anorexia, or "pro-ana," Web sites (with more than one using the "Ana Boot Camp" name) have for years been a controversial Internet fixture, with users sharing extreme diet tips and posting pictures of emaciated girls under headlines such as "thinspiration." But what was unusual about the site mentioned above (which is no longer available) was where it was hosted: the ubiquitous social networking site Facebook.com. The (largely female) users who frequent pro-ana sites have typically done so anonymously, posting under pseudonyms and using pictures of fashion models to represent themselves. Now, as the groups increasingly launch pages on Facebook, linking users' real-life profiles to their eating disorders, the heated conversation around anorexia has become more public. Many pro-ana Facebookers say the groups provide an invaluable support system to help them cope with their disease, but psychologists worry that the growth of such groups could encourage eating disorders in others.

Rose, 17, a Maryland high-school senior who, like several other women interviewed for this story, asked to be identified only by her first name, was active in pro-ana Facebook groups for two years. There, she found a community of people like her—people who had a disease with which few of their friends could identify. "These sites provided a setting where I could talk about the illness without people trying to fix me or tell me that what I'm doing is horrible, disgusting, maladaptive," she says. "For me, part of the illness was just about getting attention. You feel so lonely and you want someone to notice you, and I guess that's kind of the way to do it, even with other sick people."
Many members of the Facebook groups have migrated over from other social networking sites, like MySpace and Xanga. "Facebook's the most personable," Rose says. "If you're on something like MySpace, that's famous for creepy old men. Facebook seems the safest." Kate, a 20-year-old Utah college student, says being able to see people's faces, friends and interests on their Facebook sites makes for a more intimate community. "It's a lot more of a support group for pro-ana," she says. "MySpace was more focused on tips and tricks and when to exercise. [On Facebook], there's a lot of really close networking, so you add those people as friends and exchange phone numbers, and when you're having a hard day, you talk on the phone."

Dr. Steven Crawford, associate director of the Center for Eating Disorders at Sheppard Pratt in Baltimore, sees the openness of the Facebook site as part of its appeal. Increasing numbers of teenage patients at the center are joining Facebook groups that proclaim their disorders to the world, which Crawford believes is a means of adolescent rebellion: "It's almost like putting it in your face: I have an eating disorder. I am anorexic."

Pro-ana group creators insist that they aren't recruiting anorexics and are just supporting each other. In fact, there are some groups that are legitimately focused on recovery. Still, the effects of even such makeshift support groups are likely not as benign as some fans claim. "The more types of these sites that you use, the higher your risk for disordered eating is," says Stanford professor Rebecka Peebles, M.D., acknowledging that that correlation doesn't prove that the sites necessarily contribute to the disorder. A 2006 study that she coauthored found that 96 percent of teens diagnosed with eating disorders who visited pro-eating disorder Web sites learned new dieting and purging techniques, and almost 50 percent of teens who visited sites ostensibly devoted to eating disorder recovery also learned new weight-loss tips.

The openness of Facebook isn't universally appealing—some girls still create fake profiles with names like Skinny Minny and Ana Thin or worry that their friends will notice the groups they've joined—but many users fit the defiant profile Crawford describes. Stef, 19, says her friends have asked why she's joined so many pro-ana groups, but she doesn't care if they're worried; having access to thinspiration, weight-loss tips and fasting partners is more important. "I basically say it's helping me deal with my eating disorder, either for good or for bad, but I know that I'm taking care of it in the best way possible," the Pennsylvania college student says.

Unsurprisingly, opponents of groups that glorify eating disorders haven't stood by idly—anti-anorexia groups by far outnumber pro-ana groups on Facebook. Some have members who number in the thousands and actively hunt down pro-ana groups, and then lobby Facebook authorities to delete them. Recently, they managed to shut down one notorious site as well as the Facebook account of its creator, a girl who would encourage others to post their pictures online and then harshly detail their "problem areas."

Facebook doesn't track how often it deletes pro-ana pages, but the groups violate the site's terms of use by promoting self-harm or harm to others. A team of Facebook employees actively searches for and deletes pro-ana groups along with groups promoting everything from bigotry to self-mutilation, according to company spokesman Barry Schnitt. In response to increased scrutiny and criticism, many pro-ana groups are now private and can't be found in a search, and still others omit the term "pro-ana" from their titles.

Most of the anti-pro-ana groups try to warn people away from pages that promote anorexia and educate them about alternatives, says Angela Ross, 19, who has recovered from an eating disorder and created the 1,400-member Stop Pro-Ana page. Ross says she discovered pro-ana sites one day while feeling depressed about her weight and surfing the Web. The sites, she says, fueled her fledgling eating disorder. Similarly, a 15-year-old high school student in Philadelphia happened upon the pro-ana community while flipping through Facebook. "I was looking through groups and I found [a pro-ana group]," she says. "I was like, 'Wow, these girls kind of know what I'm saying.'" Now, using a different account, she's joined dozens of the groups and downloaded Facebook applications that allow her to share thinspiration pictures with friends. She spends about 45 minutes on her pro-ana account every day, although some of her friends will stay online for as much as five hours daily, posting in groups and chatting with other pro-ana Facebookers, she says.

Marcia Herrin, a Dartmouth professor who has written several books on eating disorders, finds the public nature of the discussions of anorexia on Facebook encouraging, because it shows that teens are less afraid of confronting eating disorders. "To me, that illustrates or indicates that teens these days are so wise," she says. "They've seen so much, they know so much, compared to when I was a teenager in the '60s, that not all of them are wrapped up in eating disorders. Girls are concerned about other girls in their social group who they see toying with an eating disorder. They may talk to them directly, they may talk to a school counselor, they may talk to the girls' parents."

Rose actually hoped some of her friends would see the groups she was joining and talk to her about them. "I wanted one of my close friends to see it and rescue me," she says. But unfortunately, no one did. At one point, she was so involved in the Facebook pro-ana community that she started her own group in defense of it; eventually she deleted that group and stopped posting in others. She couldn't get over her guilt at "helping someone kill themselves" by supporting them in their fasting, and she realized that the groups weren't truly helping her. "Even though the pro-ana sites provided a way for me to communicate with people, it wasn't real-life connections and it wasn't real friendships," she says. "It was us telling people, 'Oh, stay strong.' I was not getting better. I was venting the frustrations. I just wanted to talk to people with similar experiences; they really didn't help at all."

Rose says she has since recovered from anorexia and she rarely visits pro-ana Facebook groups. When she does, she says, she's mostly relieved to no longer be part of that world.


Minh said...

Thanks for your article. I would also like to suggest another website with lots more information about eating disorders as well as addictions. http://www.lifeworkscommunity.com

Lynne Gordon said...

Anorexia is such a serious problem. But the solution is so simple.

Anorexia is not a disease. It is a mental disorder. Categorizing it as a disease simply makes its sufferers feel that the solution is out of their hands.

I say we need to put the control back into the hands of the women who have been overtaken by this disgusting mental disorder.

Give women the right information and we can make the right decisions.

Everyday and all day long your body is striving to do one thing and one thing only - GET ITSELF BACK INTO BALANCE.

Just learn how you can help it to do so.